Being diagnosed with lupus can affect a person both physically and emotionally. Learning to live with this depleted disease easy is not an easy task therefore you must understand that most of your feelings are normal and that with hope there are always possibilities.
You need to understand that there are many challenging feelings that you will face and the power to understand those feelings comes from training yourself different techniques in order to cope with them. With the right tools, support, education, you can ultimately lead a positive and productive life with lupus.
Main Challenges you May Face
Lupus can have visible effects on your body and can leave you with different side effects caused by your treatment. The corticosteroids that are often prescribed to treat lupus can cause visible weight gain. You may also suffer from various rashes or ulcers. Also, the Raynaud’s Syndrome can cause a change of your skin color in the extremities. Most visible symptoms of lupus can cause insecurity, self-esteem issues and depression.
Skin conditions are not the only thing lupus can cause. You may also face physical symptoms such as pain and fatigue. Learning to live with chronic symptoms like pain and fatigue can seriously affect a person’s state of mind, leading to frustration and even a feeling of hopelessness. Pain can also lead to difficulties with sleeping, which then creates the fatigue cycle that can make completing daily tasks challenging.
When dealing with lupus there will be periods of time when you will also experience physical limitation with your work and your daily activities. Given the fact that lupus makes you feel tired on various occasions and the pain triggers suddenly you will more likely not be able to sustain them.
This may cause difficulty with keeping up your normal pace at work and even affect the ability to enjoy and to maintain your hobbies. These limitations can cause stress, depression, and maybe affect you financially because in severe cases people suffering from lupus have to leave their job entirely.
This ultimately leads to socially isolation due to the fact that you don’t longer want to go out, see your friends and family and is just too hard to explain your emotional burden. Especially during a lupus flare you may feel like your energy levels drop to the critical point and feel too weak to attend your regular social activities. You may not be as physically confident in your appearance and choose to be alone for that reason. If you are not able to work, you may feel as though you have lost your sense of purpose and your entire social aspects are drawn from your life.
Not knowing how your days will make your feel anxious and appalled in regards to your future. But the fact is that worry and stress don’t go along with lupus therefore it is very important to find things that will keep your body an min occupied and help you alleviate these feelings of stress.
Different ways to Cope with Lupus
Become More Active
People that suffer from lupus feel very good when doing low impact exercises like walking, swimming and different types of aerobic classes. This helps them reduce muscle stiffness, boost muscular strength, prevent osteoporosis, relieve stress, and assist in better sleep. Not to mention the obvious benefits of helping protect your heart and cardio-vascular system.
Smoking is bad for health, regardless if you have lupus or not. It weakens your calcium levels and reduces your heart rate therefore quitting is your best option.
Get Enough Rest
Do your best and try to sleep 7 or 8 hours per night because lupus reduces your energy levels dramatically. If you find it difficult to rest some useful tips are very useful: keep a regular sleep schedule, keep electronics out of the bedroom and try to avoid physical activity and foods too close to your bedtime.
Avoid the Sun and Even Indoor Fluorescent Lighting
Photosensitivity is common in lupus and can exasperate and even cause certain lupus conditions leading to a lupus flare. Always wear sunscreen with SPF of at least 30 that blocks both UVA and UVB rays. Indoor lighting can also give off these potentially harmful UV rays, so keep that in mind when in the workplace or even at home.